(HUNTINGTON BEACH, CA) – July 22, 2013 — Sharing a passion for the ocean and helping others, about 700 people gathered at the 6th annual Pipeline to a Cure gala on July 20th night to raise money to find a cure for cystic fibrosis (CF). The Pipeline gala raised more than $525,000, bringing the total of the Pipeline campaign to more than $2.5 million.
CF ambassador and 18-year old high school graduate Carly Lindmeier shared her story and struggle with the hereditary disease, noting the difficulty she faces while dealing with hours of daily treatments, dozens of medications and the effects of cystic fibrosis-related diabetes. Carly talked about how with the average lifespan of someone with CF being 37 years old, at age 18 she is now middle aged. She added that Pipeline supporters bolster her sense of hope to continue the fight with a positive attitude.
Following Carly’s speech, attendees contributed to Bid for a Cure, where all dollars raised go directly to research. LA Car Guy’s Mike Sullivan matched donations, bringing the total contributions for Bid for a Cure to $135,000.
Pipeline honored Mike and Christine Ness for their ongoing support of the event and the CF mission to find a cure. As the front man to Social Distortion, Mike Ness has made time for Pipeline even with a grueling touring schedule. To the delight of the attendees, Ness joined the band Flashback Heart Attack for a few songs.
Other celebrity attendees included honorary co-chairs Laird Hamilton and Dave Kalama, Gabrielle Reece, Billie Joe Armstrong of Green Day, Olympic gold medalist Jason Lezak, surf legends Robert August, Peter “PT” Townend, Jericho Poppler, Mickey Munoz and Sam August. Jed Noll, son of legendary big wave surfer Greg Noll, contributed a hand-shaped, re-creation of the 11-foot surfboard Greg rode on that historic winter day at Pipeline on the North Shore of Oahu in 1964.
The Pipeline to a Cure event was created to herald the discovery by Australian researchers who found that children with cystic fibrosis who surfed had significantly healthier lungs. Doctors determined that inhaling saltwater mist has a powerful effect on rehydrating the lining of the lungs, which allows cystic fibrosis patients to more easily eliminate bacteria-contaminated mucus. This discovery led researchers to develop a hypertonic saline solution, which cystic fibrosis patients around the world now inhale every day. In essence, cystic fibrosis patients now mimic a “surf session” on a daily basis.
Cystic fibrosis affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. The average lifespan of someone with cystic fibrosis is 37 years old.
Current and past sponsors are Wahoo’s Fish Taco, LAcarGUY, A-Med Health Care, Hyatt Regency Huntington Beach, American Airlines, Coast Benefit Consultants, BJ’s Restaurants, Nick Alexander Imports, Coca-Cola, RAJ Manufacturing, Todd and Sue Klug, Matros Family, Healthcare Management Services, Kaiser Permanente, Rutan & Tucker, Heineken, Crown Imports/Pacifico, CBS Sports, Quiksilver, Volcom, HB Surf School, Newport Surf Camp, Time & Alarm Systems.
About Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. The Foundation is the leading organization in the United States devoted to cystic fibrosis. It funds and accredits more than 115 CF care centers, 95 adult care programs and 50 affiliate programs, and has 80 chapters and branch offices nationwide.
The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind. It has received a four-star rating for sound fiscal management from Charity Navigator, the largest independent charity evaluator in the United States and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance. The Foundation’s business model has been recognized by the National Institutes of Health and by publications such as Forbes, The New York Times, The Wall Street Journal and BusinessWeek.